Tag: care

Is it Going to Be Okay? / Est-ce que ça va aller?

This is is a multilingual comic that serves as a meditation on the infrastructures of COVID-19, care, and time. In the spirit of the multilingual spaces I inhabit in Tio’tia:ke/Mooninyaang/Montréal, I have chosen to write bilingually—a process that can be messy, but that speaks to my experiences of COVID-19 locally as I am thinking of COVID-19 globally. (read more...)

Screenshots of the Field: Viral Loads and the Contagious Potentials of Digital Ethnography

Over the course of the past six months, I have been actively doing fieldwork on HIV care in Turkey on Zoom. Believe it or not, for an anxious person like myself, who to this date did not approach or talk to anyone in the field without being completely soaked in sweat, I have actually been enjoying doing research online. I recognize the “anxieties, challenges, concerns, dilemmas, doubts, problems, tensions, and troubles” that arise from digital fieldwork, particularly given that the quality of being virtual does not guarantee exemption from gendered, ableist, and racialized violence. However, these issues do not exhaust the methodological possibilities and relational potentials of online research, which I address in this blog post. (read more...)

Living in a Time When “Death Feels Closer”

“I know I’m young, and dying isn’t something I’m ‘supposed’ to think about yet, but how can I not? Death feels like it is everywhere,” earnestly intoned Autumn, a twenty-five-year-old woman I met in late 2020. Autumn was a recent college graduate whose grandfather and roommate had both died during the vicious summer surge of Covid-19 in Los Angeles. The deep sense of loss she felt—not only from their deaths but also from the lack of national acknowledgment—had led her to seek out others whose lives had been touched by death. (read more...)

The Paradox of Autonomy and Care for Mothers of Adults with Disabilities in Brazil

Since the early 2000s, Brazil has experienced a significant change concerning the rights of people with disabilities in the country. Based on the struggles of the Brazilian Disability Rights Movements, in 2009 the country promulgated the UN Convention on the Rights of Persons with Disabilities (2006) and in 2015 enacted the Brazilian Inclusion Law, also known as the Statute of People with Disabilities. The promotion of autonomy and the social participation of people with disabilities is at the core of these legislations. While these measures are not always accompanied by policies that can actually guarantee their implementation, they still impact people with disabilities in the way they foster such discourses around autonomy and independence. (read more...)

Zika, abortion, and care: the work that falls to women beyond the epidemic

Feminist studies in geography, anthropology, and public health have indicated that women do more work during epidemics in terms of prevention and care (Rivera-Amarillo and Camargo 2020). In particular, this text explores two burdens that women have borne during the Zika epidemic: abortion and care for people with disabilities. I will briefly compare the cases of Colombia and Brazil, the countries most affected by Zika in the Americas, drawing attention to women’s bodies and rights, as well as to the debates on reproductive justice that took place during and after the epidemic outbreak that occurred between 2015 and 2016. (read more...)

Mine Detection Dog ‘Unit’: More Than Humans in the Humanitarian World

How to “clean” and “liberate” contaminated territories occupied by remnants of war? How to perceive and remove explosive devices specifically designed to evade detection? How to remedy and undo the suspicion deeply sown in rural landscapes? In the political context of peace negotiation and post-agreement in Colombia, land decontamination and (partial) recovery has not been an exclusively “human” humanitarian affair. On the contrary, other species and nonhuman actors have been indispensable in the work of detection and in the slow but essential effort to regain trust, not only among former enemies, but also between rural communities and territories. In the case of Colombia, mine-sniffing dogs have been the best co-laborers (de la Cadena 2015, 12). (read more...)

Negotiating Ethical Technology Use: Trust and Care in End-of-Life Conversations

The headline on the local news station’s website was sensational: “Bereaved Family Upset Kaiser Used Robot to Tell Father He Would Die”. Evoking some sort of post-modern dystopia, the article explains that the family “was taken by surprise when a robot rolled into the room” to deliver the news that an elder family member’s illness had progressed past the physician’s ability to treat it. While the robot actually was a remote physician using teleconferencing software to communicate with the patient and his family, the monitor projecting an image of the physician’s head and shoulders sat atop a tall, narrow metal unit reminiscent of a body. The “robot doctor” story was picked up by national news outlets, like the New York Times, and medical ethicists weighed in on the ethics of communicating “sensitive” topics remotely. The news stories problematized the impersonal, almost routinized, care as it was perceived by the family. In one, a representative from the American Medical Association commented, “We should all remember the power of touch – simple human contact – can communicate caring better than words.” (read more...)

The Future of LOVOT: Between Models of Emotion and Experiments in Affect in Japan

Aya is anxiously waiting for a future in which humans coexist with robots. She didn’t think this was possible in her lifetime, but when she learned about LOVOT, a 43 cm-tall furry robot on wheels designed specifically to seek out and offer affection, she was elated to discover that the future she had imagined was within reach. She urged me to take hold of it—LOVOT, that is. We were chatting at a recent Talk Session for LOVOT fans and a few of the creatures were spinning around a table as we talked. Its wheels folded into its body, and with animated LED eyes it looked up at me and blinked. I picked it up and Aya poked its nose, eliciting something like an irritated giggle from the robot, whose name I learned was Cherry. Aya stroked Cherry’s belly and its eyes blinked a few times and then slowly closed. “It fell asleep! How cute (kawaii)!” Aya exclaimed. Although Aya claimed to be uninterested in robots, technology, or anything in the IT world in general, she was immediately and, as she describes, inexplicably moved by LOVOT. It’s just an emotion (kanjō), she reflected. “You know about lonely people (kodoku na hito) in Japan, right?” Aya asked. “I think that everyone needs to feel affection (aichaku), and everyone enjoys this feeling we can get from cute things. It fulfills your heart (kokoro o mitasu). But not everyone can get this feeling… I think that in the future maybe one or two people out of ten might simply have relationships with things like LOVOT. It’s not really any different from the kind of affection one gets from a dog or cat, or even another person. And it’s their choice! This is a really interesting future!” (read more...)