disability | Platypus

The Allowable Limit of Disability

 Gabrielle Hanley-Mott  June 22, 2022

In February 2022 a court in Norway banned the further breeding and selling of British Bulldogs and Cavalier King Charles Spaniels. Beyond Norway, the ban has sparked conversation amongst UK and American breeders. The reason for this ban is the high rates of disability that affect the dogs; the official language is that the individuals are ‘disease guaranteed’. As a person whose work often overlaps with critical disability studies, I found myself obsessing about these news pieces. These dogs were banned because they were considered too disabled, this court was putting a limit on how disabled these dogs were allowed to be. My conclusion, after stewing on this for 6 months, is that disability is the limit of commodification and vice versa, commodification is the limit of disability. First, it is important to understand that these dogs are a commodity. And as a commodity, they have always been disabled. These (read more...)

Inclusion and Opportunities for Equal Participation for Autistic University Students in France

 Cara Ryan  June 7, 2022

 Listen to a reading of this post.

Like the term “equal participation”, the words “inclusion” and “inclusive” are prevalent today. And they are all typically linked: “equal participation” is often the goal of initiatives focused on “inclusion.” Although the word “inclusive” might appear capacious (inclusive just means everyone, right?), projects focused on “inclusion” and “equal participation” often target specific populations of people who have previously been excluded from something. That’s the case of projects focused on the inclusion of autistic people into higher education, including one in France where I conducted ethnographic research for the dissertation I am currently writing on the changing categorization(s) of autism in France. (read more...)

Disability Dongle

 Liz Jackson, Alex Haagaard, Rua Williams  April 19, 2022

이 컨텐츠는 한국어로도 읽어볼수 있습니다.

 Listen to a reading of this post.

I created the term “Disability Dongle” in 2019 to draw attention to the phenomenon of design and engineering students and practitioners who prototype “innovative” disability solutions. The definition satirizes an outcome in which designs or technologies “for” disabled people garner mainstream attention and accolades despite valid concerns disabled people have about them. (read more...)

Moving Towards Disability

 Gabrielle Hanley-Mott  December 2, 2021

December 3rd is the UN’s International Day for People with Disabilities. The theme of 2021 was “Building Back Better: toward a disability-inclusive, accessible and sustainable post COVID-19 World”. Of course, 2021 has hardly been a post-COVID world; and the social and health effects of the pandemic continue to place people with disabilities at risk. According to the UN, days of recognition work to celebrate, educate, and ‘mobilize political will’ (https://www.un.org/en/observances). These days of recognition are often for complex problems and, as CASTAC’s 2020 post says, the next question is What Happens The Day After? (Borodina 2020). This year I would like to present a brief case for how and why we, in STS and anthropology, can take up Disability as a lived reality and analytic for our work. I discuss disability as a category and its implications and then present two possible frameworks for its incorporation. (read more...)

International Day of Persons with Disabilities: What Happens the Day After?

 Svetlana Borodina  December 3, 2020

Тази статия също е налична на български.

Twenty-eight years ago, in 1992, the United Nations General Assembly resolution 47/3 proclaimed December 3 as International Day of Persons with Disabilities. Immediately following the International Day for the Abolition of Slavery and followed by the International Day of Banks (yes), the International Day of Persons with Disabilities was and still is charged with the impulse “to promote the rights and well-being of persons with disabilities in all spheres of society and development, and to increase awareness of the situation of persons with disabilities in every aspect of political, social, economic and cultural life.” Each year, a specific theme is chosen to direct public attention toward a specific issue. In 2018, it was “Empowering persons with disabilities and ensuring inclusiveness and equality.” In 2019, “Promoting the participation of persons with disabilities and their leadership: taking action on the 2030 Development Agenda.” In 2020, “Not all disabilities are visible.” A product of a policy-oriented reformist environment, International Day of Persons with Disabilities helps to direct attention, mobilize action, and bring about material changes in the lives of people with disabilities. But what happens to these impulses on December 4th (besides the International Day of Banks)? (read more...)

“Doing Being a Latina,” or Performing Identities Through a Computer Voice

 Sasha Kurlenkova  November 2, 2020

This is a comment on Meryl Alper’s book “Giving Voice” which explores the topic of enacting an identity (e.g. a Latina girl) through a speech synthesizer or pre-recorded utterances of one’s “voice donor.” The ability to communicate is often taken-for-granted and imperceptible, despite being vital to everyday life. It defines our social performances as family members, professionals, and neighbors. Moreover, institutions as well as identities need to be “talked into being” (Heritage and Clayman, 2010). Although in many mundane situations we get by with meaningful bodily gestures (Goodwin, 1986) such as nodding, shaking the head, waving, and pointing, other interactions require us to use complex language processing skills and muscular control over the vocal organs and hands. (read more...)

Elements of disability inclusion in Soviet disability pedagogy

 Svetlana Borodina  October 26, 2020

For someone interested in the genealogy of disability inclusion in Russia, Soviet disability pedagogy, known at the time under the name of defektologia, may seem to be a somewhat unexpected place to turn to. On the one hand, the Soviet system of korrektsionnoye education for children with disabilities embodied isolationism and paternalism, the features which characterized Soviet disability governance more broadly (Shek 2005): schools for students with disabilities were built at a significant distance from the heart of urban life; they functioned predominantly as boarding schools, de facto exerting control over children’s mobility and public appearance; they often had little contact or interaction with mainstream schools and communities. On the other hand, Soviet disability pedagogy also produced moments when disability exclusion, otherwise naturalized across various domains of life, had been problematized and questioned. To them, I turn in this post. (read more...)

On The Social Life of TBI

 Austin Duncan  September 29, 2020

A Traumatic Brain Injury (TBI) is a common injury that occurs when a physical blow or force to the head damages the brain inside the skull—full stop. As such, TBI is a natural part of life in a world in which it is possible (and easy) to hit one’s head. It is often fatal, one of the leading “causes of death and disability” in the US (CDC 2015). This straightforward conception is codified in biomedical publication and practice, enshrined in the federal TBI Act of 1996 and national disability policy, and has even made brief appearances in popular film and public debate about the health risks of contact sports. This bio-political consensus is thus clear and plain: “TBI” indicates a singular event and its direct and natural bodily consequences. (read more...)