Tag: Precision Medicine Initiative

Consumer Genetics and the Capitalization of Hope

In the twilight of the last millennium, an audacious scientific project was started by an international team of researchers. Their objective, like the countless scientists who came before them, was to advance humanity. But unlike all of the proceeding projects, this effort would map out what it meant to be human. The project, known as the human genome project (HGP), had the seemingly impossible goal of describing every gene within the Homo sapiens genome and mapping all 3 billion base pairs. If completed, the applications were said to be limitless. From social science research to medicine, the innovation gatekeepers of the world said that our lives would change for the better. But who has benefited from the HGP? Surely all of humanity, right? But at what point, and will it be equitable? These are questions I wrestle with, though I didn’t always. (read more...)