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Staring Contest

Sophie Katz October 10, 2023
Listen to a reading of this post.

It’s 3 in the morning. I’m sitting at the end of the hallway of the boomerang-shaped intensive care unit (ICU) where I work, looking into the darkness beyond the unit’s only window. When I’m on the unit, the world outside the hospital transforms into something entirely remote—intangible, imperceptible, inconsequential. I force myself to imagine the scent of the fresh air I will inhale when I leave. It’s hard to remember that the world is pulsing with life outside these walls. The hospital’s resistance to darkness and quiet permeates the boundaries of reality itself. The fluorescent lights transform me into something other than a person, washing out the details that make me Sophie. In here, I can lose myself. In here, I am lost. (read more...)

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Personal Computing and Personhood in Design and Disability

Meryl Alper June 13, 2017

Editor’s Note: This is the third post in the series on Disabling Technologies When I try to explain augmentative and alternative communication (AAC) devices to those unfamiliar, I usually start with physicist Stephen Hawking, who has amyotrophic lateral sclerosis (ALS). Hawking speaks using a high-tech computerized AAC device with synthetic speech output (Mialet, 2012). The electronic voice communicates to others the text that Hawking selects from a cursor moving across the computer screen mounted to his wheelchair using his cheek movement as input. These sorts of ‘tools for talking’ are also used by those with other disabilities and medical conditions that potentially impair oral speech such as autism, cerebral palsy, or a stroke. AAC devices are mobile by definition, as they ought to move with a person as they move through the world (Reno, 2012). They are becoming more “mobile” in another sense too. Individuals increasingly have the option of using AAC devices that take the material form of ordinary smartphones, tablet computers, and mobile apps that simulate software on specialized computers dedicated to AAC (Alper, 2015). (read more...)

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Finding a ‘Home’ Online

Jasmine McNealy September 23, 2016

An oft-repeated mantra in scholarship on privacy is that you have the greatest expectation of privacy inside of your home, and the least expectation of privacy in public. What this means is that you can legitimately assume what happens inside your home will stay in your home (to use a phrasing usually connected with visits to Las Vegas). But if people can view or hear an event or occurrence, whether you are having an argument on your cellphone or you trip, fall, and people can see it without technological assistance, you cannot reasonably believe that what happened will remain ‘private.’ This perspective permeates law and how cases involving privacy and the use of personal information are resolved. But in an era in which many people live their lives online where some much is publicly accessible, what does the concept of home mean and how should it influence how we view privacy? (read more...)

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