Tag: disability

On Disability, Infrastructure, and Shame

Content note: This piece centers an evolving journey with internalized ableism and accompanying feelings of virtue and shame, particularly around public transportation, driving, and accessibility. Readers can step back from this piece if it is too difficult to read right now. I did not expect Northern Europe to make me more disabled than the United States and Mexico—more disabled and more ashamed. In 2015, I began experiencing chronic nerve pain on my right side—hip and shoulder—which developed in response to a complex musculoskeletal condition. By 2019, I could not walk more than a few blocks or lift much with my right arm, and if I climbed too many stairs in a day, I would pay for it later. In addition to walking, I stopped being able to bike, swim, or hike. Some days just moving around the house or doing the dishes would activate agonizing pain. Over time, I stopped going to places where I couldn’t drive. (read more...)

How to Imagine the Unknown: Choosing an Arm Prosthesis

When amputation happens, it is an un-ignorable event. After the surgery, the person learns how to be an amputee, they learn to conceptualize their altered body. This work belongs to the inner world of the amputee, their bodily experience, and to the attitudes and environment around them. Many amputees will adopt a prosthesis. However, the journey of choosing, training on, and incorporating a prosthesis into one’s practice and identity requires the amputee to imagine future bodily experiences and knowledge. Much of this imagining happens in unfamiliar and mediated settings: in doctors’ offices that are also hi-tech device shops, or in meetings with other prosthesis users. (read more...)

Is it Going to Be Okay? / Est-ce que ça va aller?

This is is a multilingual comic that serves as a meditation on the infrastructures of COVID-19, care, and time. In the spirit of the multilingual spaces I inhabit in Tio’tia:ke/Mooninyaang/Montréal, I have chosen to write bilingually—a process that can be messy, but that speaks to my experiences of COVID-19 locally as I am thinking of COVID-19 globally. (read more...)

LaMDA and the Limits of Sentience

In early June, Blake Lemoine, then an engineer at Google, claimed that LaMDA, a Machine Learning-based chatbot, was sentient and needed to be treated with respect. LaMDA stands for Language Model for Dialog Applications. AI chatbots are designed to interpret user-entered text, analyze key phrases and syntax with Natural Language Processing (NLP) and Machine Learning (ML) models, and generate responses and actions that feel believable as a conversational partner . After multiple conversations with LaMDA, Lemoine concluded that LaMDA was psychologically like a child of 7 or 8 years old . Google accused Blake Lemoine of “persistently violating clear employment and data security policies” and fired him .  (read more...)

Injury and Fitness: Responsibility through Biomedicine 

Kashif pointed to different parts of the wounds on his leg and explained to me how they had healed, exacerbated, or been ignored at different places of care. He had gotten a chemical burn injury on his left leg a year ago while mixing HCl (Hydrochloric acid) and H2O2 (Hydrogen peroxide in bleach), two highly reactive chemicals, almost on the spot of the textile factory where he stood now and talked to me. He was not among the first few people introduced to me by the Safety and Security Officer because he was not considered disabled among the workers at the factory I was conducting fieldwork in Punjab, Pakistan. (read more...)

Platypod, Episode Three: Disability, Toxicity, and the Environment

In this episode, Platypod presents a conversation between Elizabeth Roberts (the University of Michigan) and Sophia Jaworski (the University of Toronto). They discuss the complexities of corporeal life in toxic environments. This episode was created with the participation of Elizabeth Roberts (the University of Michigan, speaker), Sophia Jaworski (the University of Toronto, speaker), Svetlana Borodina (Columbia University, host, producer), Gebby Keny (Rice University, host, sound editor), and Angela VandenBroek (Texas State University, CASTAC web producer). The transcript of their conversation is available below. We thank Sophia Jaworski for her work on editing the transcript for comprehension. (read more...)

Bioethics Must First Burn

Bioethics must burn before it can be reimagined to enable the flourishing of all humans, and not just the ones that align with or are presupposed by its ideological orientations. By “burning” bioethics, I mean the intentional disruption or damage of citation processes, including who and what is cited within the field– what Sara Ahmed calls the “bricks” (2017, 16) that form the philosophical edifice of the field of bioethics. While the idea of “burning” bioethics may seem to be hyperbolic, the metaphor is apt given the tendency of the field to label any attempt at advocacy on behalf of marginalized persons, including disabled persons, as advocacy and “not bioethics” (for it challenges the idea of what bioethics should be or do). (read more...)

Platypod, Episode Two: Ableism in Anthropology and Higher Ed

In this episode, Platypod presents a conversation between Laura Heath-Stout (Brandeis University) and Rebecca-Eli Long (Purdue University). They discuss their research and experiences of ableism in academia, anthropology, and higher ed, in general. This episode was created with the participation of Laura Heath-Stout (Brandeis University, speaker), Rebecca-Eli Long (Purdue University, speaker), Kim Fernandes (University of Pennsylvania, host), Svetlana Borodina (Columbia University, host), Gebby Keny (Rice University, sound editor), and Angela VandenBroek (Texas State University, CASTAC web producer). The transcript of their conversation (edited for comprehension) is available below. (read more...)