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O Paradoxo da Autonomia e do Cuidado para Mães de Adultos com Deficiência Intelectual no Brasil

 Helena Fietz  May 19, 2020

This content is also available in English.

Desde o início dos anos 2000, o Brasil vem experienciando uma mudança significativa no que tange à garantia de direitos das pessoas com deficiência no país. Uma trajetória que contou com a luta de movimentos sociais de pessoas com deficiência e culminou na promulgação da Convenção da ONU sobre os Direitos da Pessoa com Deficiência (2006) com equivalência à emenda constitucional em 2009, e na publicação da Lei Brasileira de Inclusão, também conhecida como o Estatuto das Pessoas com Deficiência, em 2015. Legislações estas que possuem em seu cerne a promoção da autonomia de pessoas com deficiência e sua participação social e comunitária. Apesar destas medidas nem sempre virem acompanhadas de políticas que de fato garantam sua implementação elas ao mesmo tempo refletem e fomentam os discursos que as embasam e, portanto, impactam a vida de pessoas com deficiência e suas famílias. (read more...)

The Paradox of Autonomy and Care for Mothers of Adults with Disabilities in Brazil

 Helena Fietz  May 19, 2020

Este conteúdo também está disponível em português.

Since the early 2000s, Brazil has experienced a significant change concerning the rights of people with disabilities in the country. Based on the struggles of the Brazilian Disability Rights Movements, in 2009 the country promulgated the UN Convention on the Rights of Persons with Disabilities (2006) and in 2015 enacted the Brazilian Inclusion Law, also known as the Statute of People with Disabilities. The promotion of autonomy and the social participation of people with disabilities is at the core of these legislations. While these measures are not always accompanied by policies that can actually guarantee their implementation, they still impact people with disabilities in the way they foster such discourses around autonomy and independence. (read more...)

A schizophrenic streak

 Mascha Gugganig  May 12, 2020

In discussions on COVID-19, it has become a common trope that disciplines like anthropology are particularly relevant and fitting for writing about the pandemic. Indeed, the pandemic unearths many dormant questions about inequalities in public health care systems, uneven food distribution, anthropogenic effects on the environment, and more. Just as the virus spreads globally, so does it bring to the surface injustices across the globe: in the slums of Mumbai, in Northern Italian hospitals, in your own four walls. (read more...)

Siasa Za Kiwakati Za Ethnografia, Urithi, Na Maambukizi Katika Kipindi Cha Covid-19 Nchini Tanzania

 Rebekah Ciribassi  May 6, 2020

This content is also available in English.

Dondoo ya Mtoaji: Makala hii ni ya nne katika mfululizo wetu wa sehemu tano unaoitwa “COVID-19: Views from the Field.” Bonyeza hapa kusoma utangulizi ulioandikwa na mtengenezaji wa mfululizo huu, Rebekah Ciribassi. Kuhusu tafsiri: Tafsiri hii isingewezekana bila msaada wa msingi wa Sophia George, lakini kama kuna makosa ya kiuandikaji ni ya mwandishi. Shukrani ya dhati kwake. Nimeishi Tanzania tangu mwezi wa tatu mwaka 2018, nikiwa nafanya utafiti wa kiethnografia na familia mbalimbali ambazo zina wagonjwa wenye ugonjwa wa kurithi wa damu unaoitwa siko seli. Nilianza kuvutiwa na utafiti huu wa maisha ya kijamii na ya kisiasa kuanzia mwaka wa 2012, nilipojifunza kwa mara ya kwanza kuhusu kundi la wanaharakati wa kisayansi wa Pan-Afrika, pamoja na Watanzania, wanayoipa kipaumbele huduma na utafiti wa ugonjwa wa siko seli barani kote Afrika. Nilitaka kujua: mabadiliko gani ya msingi ya kianthropolojia yanatokea ili kuhamisha nyakati za maingilio ya afya ya dunia kutoka kasi (read more...)

The Temporal Politics of Ethnography, Heritability, and Contagion in Tanzania During Covid-19

 Rebekah Ciribassi  May 6, 2020

Toleo la kiingereza linapatikana hapa.

Editor’s note: This post is the fourth in our five-part series “COVID-19: Views from the Field.” Click here to read an introduction written by series organizer Rebekah Ciribassi. I have been living in Tanzania since March of 2018, conducting ethnographic fieldwork with Tanzanian families that have a genetically-inherited blood disorder called sickle cell disease. My interest in studying the socio-political life of this particular diagnosis in this particular place started in 2012, when I learned of a Pan-African bioscience movement, sited partly in Tanzania, to prioritize sickle cell disease research and care across the continent. I became curious about what it might mean anthropologically to shift the timescales of global health intervention from the immediacy of more traditionally-prioritized communicable diseases like HIV and malaria, toward the intergenerational transmission of a genetic condition. Almost two years of interviews and observation with families, activists, and healthcare providers had me thinking about the (read more...)

Platypus Celebrates AAPI Heritage Month

 Baird Campbell  May 5, 2020

In celebration and recognition of Asian American and Pacific Islander Heritage Month, take a look back at some of our favorite past posts from and about the region. (read more...)

Suspension, Risk, Suspicion: Field dispatches from Pakistan under COVID-19

 Sonia Qadir  April 30, 2020

اردو میں پڑھنے کے لیے یہاں Click کریں

Editor’s note: This post is the third in our five-part series “COVID-19: Views from the Field.” Click here to read an introduction written by series organizer Rebekah Ciribassi. Since the start of the Coronavirus induced lockdowns in Pakistan in mid-March, I have had to cut short my ethnographic field-work in the country’s Anti-Terrorism Courts, and shelter in place in my family’s home in Lahore indefinitely, as Australia’s borders also closed to temporary visa holders. Yet long before the world fell apart, I had come to realize that as a brown, Muslim woman with a Pakistani passport (who also happened to be studying Pakistan), every stage of the PhD/academic life was doubly arduous. From acquiring a visa to get to Australia where my university is based while dealing with my family’s disapproval; applying for, getting visas and traveling to international conferences, to getting research ethics and fieldwork travel approvals, every little milestone required many times the effort that my peers had to put in. (read more...)

Black Geographies: New Maroon Studies and the Politics of Place

 Alex Moulton  April 29, 2020

Jamaican Maroons are the descendants of Africans who escaped enslavement on plantations in the early colonial period. Mentions of the Maroons in the colonial record begin around 1655, when the British, having routed the Spanish from Jamaica, started facing fierce guerrilla resistance from groups of Africans who had established free communities in the hills. The Maroon population grew as frequent revolts on the plantations facilitated the flight to freedom in the hills. The British unsuccessfully tried to subdue the Maroons by force of arms. Ultimately, they signed peace treaties with the leaders of the two main Maroon groups in 1739. The treaties included land grants and recognition of Maroon autonomy, but also included stipulations that the Maroons help capture runaways and subdue revolts in the future. (read more...)