Tag: Disability Studies

As If I Were Blind…

Experience, disability and design. What is an experience and how can it be conveyed and communicated to others? "A focus on "The Experience" signals a technology has been designed with a consideration for the user's experiences. It is supposed to indicate  a technology’s role and contribution to everyday life, and the likelihood of its success once implemented. Given its popularity in design contexts, the term "experience" seems unusually rare in anthropology, with a few notable exceptions (e.g., Bruner, 1986; Turner, 1986; Hastrup, 1995, for example). This is so despite the fact that we, as anthropologists, can definitely be said to "experience" a way of living other than the one we are used to when we carry out fieldwork. This experience begins with our first encounter with another culture and its people, and continues into the writing stage, with our concerted attempts to communicate the complicated cultural aspects of the places (more...)

Personal Computing and Personhood in Design and Disability

When I try to explain augmentative and alternative communication (AAC) devices to those unfamiliar, I usually start with physicist Stephen Hawking, who has amyotrophic lateral sclerosis (ALS). Hawking speaks using a high-tech computerized AAC device with synthetic speech output (Mialet, 2012). The electronic voice communicates to others the text that Hawking selects from a cursor moving across the computer screen mounted to his wheelchair using his cheek movement as input. These sorts of ‘tools for talking’ are also used by those with other disabilities and medical conditions that potentially impair oral speech such as autism, cerebral palsy, or a stroke. AAC devices are mobile by definition, as they ought to move with a person as they move through the world (Reno, 2012). They are becoming more “mobile” in another sense too. Individuals increasingly have the option of using AAC devices that take the material form of ordinary smartphones, tablet computers, (more...)

Decolonizing Design Anthropology with Tinn

In fall 2014, I began building Tinn, a health data tracking application for people living with tinnitus. I approached building Tinn as an opportunity to explore what a socially conscious, feminist, and anti-colonial process for developing mobile applications might look like. The idea of pairing design, building, and anthropology is hardly all that innovative; “design anthropology,” a subfield of cultural anthropology focused on empirical studies of use cultures, has been around since the 1980’s (at least). What sets Tinn apart, however, is my commitment to working with communities of color in Portland, OR, that have been alienated by and from the technology and application development industry because of intersecting and juxtaposed systems of gender, racial, and access inequality. Perhaps one of the central epistemic problematics for the project, then, can be posed as a question: Can we decolonize design anthropology, and to what success ordegree? What might this entail? Decolonization is slippery. My “academic anthropology” is (more...)