Tag: end-of-life

Bed-Time Storytelling

Bedtime stories are stories narrated by adults to children before they fall asleep. As an essential parenting skill, the storytelling scene is infused with love and trust. These stories make the transition from day to night easier. Rest well, tomorrow will be another day. In this piece, I wish to introduce an alternate narrative form I have named bed-time-storytelling—a practice of care born within the confines of hospice care beds. This approach redefines our understanding of storytelling, bridging the realms of the living and the departing, and opening a new chapter on how we engage with tales shared in the threshold between two worlds. (read more...)

Living in a Time When “Death Feels Closer”

“I know I’m young, and dying isn’t something I’m ‘supposed’ to think about yet, but how can I not? Death feels like it is everywhere,” earnestly intoned Autumn, a twenty-five-year-old woman I met in late 2020. Autumn was a recent college graduate whose grandfather and roommate had both died during the vicious summer surge of Covid-19 in Los Angeles. The deep sense of loss she felt—not only from their deaths but also from the lack of national acknowledgment—had led her to seek out others whose lives had been touched by death. (read more...)

Negotiating Ethical Technology Use: Trust and Care in End-of-Life Conversations

The headline on the local news station’s website was sensational: “Bereaved Family Upset Kaiser Used Robot to Tell Father He Would Die”. Evoking some sort of post-modern dystopia, the article explains that the family “was taken by surprise when a robot rolled into the room” to deliver the news that an elder family member’s illness had progressed past the physician’s ability to treat it. While the robot actually was a remote physician using teleconferencing software to communicate with the patient and his family, the monitor projecting an image of the physician’s head and shoulders sat atop a tall, narrow metal unit reminiscent of a body. The “robot doctor” story was picked up by national news outlets, like the New York Times, and medical ethicists weighed in on the ethics of communicating “sensitive” topics remotely. The news stories problematized the impersonal, almost routinized, care as it was perceived by the family. In one, a representative from the American Medical Association commented, “We should all remember the power of touch – simple human contact – can communicate caring better than words.” (read more...)