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A top-down perspective of a doctor's office, with someone on the bed, and two people (doctors) observing. One doctor says, "Well, nothing seems to be wrong. Come back when you're vomiting." The comic text below states: After tests, appointments, calls...

Monstrous Matter, Out of Place

The following is an autoethnographic comic about my experiences re-understanding a new diagnosis through revisiting Mary Douglas’s Purity and Danger. (And yes, the final panel is from a conversation I did have with a grad student colleague and dear friend.) (read more...)

Photo of a white british bulldog looking at the camera in the backyard of a house

The Allowable Limit of Disability

In February 2022 a court in Norway banned the further breeding and selling of British Bulldogs and Cavalier King Charles Spaniels. Beyond Norway, the ban has sparked conversation amongst UK and American breeders. The reason for this ban is the high rates of disability that affect the dogs; the official language is that the individuals are ‘disease guaranteed’. As a person whose work often overlaps with critical disability studies, I found myself obsessing about these news pieces. These dogs were banned because they were considered too disabled, this court was putting a limit on how disabled these dogs were allowed to be. My conclusion, after stewing on this for 6 months, is that disability is the limit of commodification and vice versa, commodification is the limit of disability. First, it is important to understand that these dogs are a commodity. And as a commodity, they have always been disabled. These (read more...)

Detangling Molecular Hauntings: Hair as a Site of Preserving Lived Experience

Hair is a dynamic biological structure and retains great social significance for humans. Hair can grow on most external areas of the body except for the palmar and plantar surfaces of the hands and the soles of the feet. The number of areas where hair is most noticeable is also the most commonly coiffed, trimmed, shaved, or plucked. These areas include the face, ears, head, eyebrows, legs, underarm, stomach, and pubic regions. As humans develop in utero into fully formed adults, hair growth signals hormone production such as pubertal development where secondary sex characteristics become more visible. Specifically for hair, it can be an indication that intertwines social identity, status, religion, economics, and politics. (read more...)

A graffiti in brown and orange that says "For all"

Inclusion and Opportunities for Equal Participation for Autistic University Students in France

Like the term “equal participation”, the words “inclusion” and “inclusive” are prevalent today. And they are all typically linked: “equal participation” is often the goal of initiatives focused on “inclusion.” Although the word “inclusive” might appear capacious (inclusive just means everyone, right?), projects focused on “inclusion” and “equal participation” often target specific populations of people who have previously been excluded from something. That’s the case of projects focused on the inclusion of autistic people into higher education, including one in France where I conducted ethnographic research for the dissertation I am currently writing on the changing categorization(s) of autism in France. (read more...)

An illustration of the political struggle symbol upright left fist in LGBTQ+ rainbow colors holding a trowel

Diversity, Equity, and Inclusion (DEI) in Epistemologies – The Line Between Bodies and Ideas?

A recent trend in the sciences is the attempt to create inclusive research spaces, as evidenced by the formation of new diversity, equity, and inclusion (hereafter, DEI) initiatives, guidelines, and hiring practices. Archaeology, a field science that has long grappled with discriminatory, dangerous, and exclusionary research conditions, has also made strides to create safe and equitable spaces. However, the very epistemic foundations and practices of the discipline are yet to reflect the orientation toward inclusion. In today’s archaeology, the concepts of “data,” “methodology,” and “rigor” (among others), which form the bedrock of scientific endeavor, still reproduce the dominant Western views of science that at their core are fundamentally heteronormative. Those theoretical approaches in archaeology that are directly concerned with minority identities, values, and politics (e.g. Critical Race Theory, feminist theory, Indigenous studies) continue to be marginalized. The marginalization of these theoretical approaches is an unfortunate development because many of these works challenge the epistemic core of what we do as researchers. They have the potential to transform what we think of as good research, not just what this research produces. (read more...)

Black and white image of a large mound foregrounded by water, known as "shellmound"

“Emeryville is Weird”

When I would tell people I worked in the small San Francisco Bay Area suburb of Emeryville, they would almost always say, “Emeryville is weird.” And then the conversation would usually stop there, they couldn’t put their finger on quite what they meant. But there’s a strangeness that hangs over the city that everyone feels, and no one can quite describe. Emeryville is mostly made up of tech campuses – the occasion for my fieldwork – and new condos, big box stores and biotech and software companies, along with some bars and restaurants for people on their breaks, and that’s nearly it, because the whole city is one square mile. Emeryville is busy during the day with professionals, who never stay more than a drink or two after work, and the place is mostly cleared out by night. It has a too new kind of feeling where all the buildings (read more...)

Collage of bits images (a woman's face, a tiger, patterns and graffiti)

Technologies of Equal Participation: Formats, Designs, Practices. Introduction.

Listen to an audio recording of this piece read by Svetlana Borodina Only today, an unremarkable Friday morning in March 2022 (the day when I was writing this text), my participation has been requested at least eight times. On my way to work, as I was running down the stairs to catch a train, through the sound of music coming from my headphones I caught, “Please make sure to vote!” This was followed by a faint addition: “if you are a voter.” As I purchased coffee in a corner shop right outside the subway, the screen solicited my participation in their customer satisfaction survey: “What can we improve?” At work, as I sat down and opened my email, I saw that the NYC Parks and Rec Department had sent out a new batch of volunteering opportunities; a colleague had sent an invitation to participate in a round table next month; and a friend working on their UX portfolio had sent a link to a survey for an app they’d been working on (“What kind of problems do I run into in my commute?”). Meanwhile, my family’s WhatsApp chat was filling up with the regular, “Sveta, are you even here?” messages, complaining about my lack of participation in conversations. A gofundme campaign to crowdfund struggling refugees and a friend’s paper silently awaited their time, too. (read more...)