Category: Series

Anti-Queer Violence, Bearing Witness, and Thinking with Algorithms on Social Media

In early June 2019, news began to break concerning the death of a Salvadoran transgender woman, Johana Medina León, of pneumonia, four days after being released from nearly six weeks in ICE custody. Before long, my Facebook feed was filled with stories detailing the persecution Johana faced in El Salvador because of her gender identity; her dangerous journey to the United States to seek asylum; and her final moments as she struggled to save her own life, as it became clear no one else would. She might have saved her own life, if she’d been given the resources. In El Salvador, Johana was a nurse. Johana’s death is tragic for many reasons, not the least of which is that had it not been for social media, it likely would have gone unnoticed. (read more...)

Happy Pride Month!

In support and solidarity with LGBTQIA+/Queer people around the world, we’re celebrating Pride Month with a collection of some of our most popular queer content from the blog. We take this moment to recognize the valuable contributions LGBTQIA+/Queer people make to our fields, our society, and our lives. Check out six of our favorites below! (read more...)

Listening to/with Technology: Meditation Apps as the New Voice of Mental Health

Shortly after giving birth to her son, Jessica began to experience a health problem that she describes simply as “pain everywhere.” About one month after we initially met at Spirit Rock Meditation Center in Marin County, California, she elaborated on her symptoms: “Joint pain, muscle pain, stabbing pain, stinging pain, burning pain, tingling, numbness…chest pains, palpitations, dizzy spells, headaches. I feel like I’m going to have a seizure, or brain fog, fatigue.” (read more...)

At the Edge of Land and Water: Navigating sea level change in Chennai

It was 8am in Ennore, a coastal region at the northern-most tip of the city of Chennai and home to artisanal fishers who have traditionally lived along the shores of the Bay of Bengal.  I had recently started my fieldwork on property relations at coastal spaces around Chennai there. The sun was out, the fishers were busy sorting through the catch of the day, and the smoke from the factories around made everything look hazy. My neighbor and long-time Ennore resident, Kumar uncle, decided to introduce me to fishers he knew at Periyakuppam, a fishing village in the area. We met the fishers and as we stood facing the sea, I asked them about the history of the village and changes in the landscape over time. In response, they pointed at the sea and said, “Look! Do you see the sand there, the sea water extended till that point until last week, but it has receded further now…come again next month and see what we’re talking about!” Just a few minutes later, they shifted their gaze to the left and asked, “Can you see those ships in the distance? That is where the port is. They built it for the ships bringing coal to the power plant. They put in sea-walls around there…” and once again, shifting their gaze towards the shore and the sea they said, “Look there, half the land in that village is now under water; it’s because of those stones from the sea-walls over there.” (read more...)

Deep Thunder: The Rise of Big Meteorology

Today has been predicted 26 billion times. The same could be said for tomorrow and the foreseeable days to follow. This prodigious divination is the work of just one entity—IBM’s The Weather Company. These 26 billion daily forecasts of IBM likely represent only a small fraction of the models and projections to which any particular day is subjected (the financial and military sectors are equally ambitious prognosticators). Backed by IBM’s computational juggernaut, The Weather Company is burning through terabytes at a brow-furrowing velocity in its effort to fit the world into a forecast. (Listen Now...)

The FDA, Patient Empowerment, and the Type 1 Diabetes Communities in the Era of Digital Health

The day-long September 2018 workshop, “Medical Devices-Patient Engagement in Real World Evidence: Lessons Learned and Best Practices,” sponsored by the Food and Drug Administration (FDA) and University of Maryland (UM), met on the Baltimore campus, the city where I spent my graduate school years. In contrast to Baltimore’s palpable desperation, UMB’s health campus gleamed with newness, its brick walkways and tastefully planted vegetation viewable through floor-to-ceiling windows. In the well-appointed auditorium, Dr. Jeffrey Shuren, director of the Center for Devices and Radiological Health (CDRH, pronounced ‘cedar’), closed his introduction to the conference with the pronouncement that as the FDA moved toward real world evidence (RWE), “patient engagement” and the data patients may collect are invaluable for RWE. (read more...)

The Dawn of Digital Therapeutics

A techno-optimistic attitude tells us we’re living at an inflexion point where care practices are being transformed by technology. Monitoring and attending to health and well-being are no longer activities bound within physical spaces like hospitals and clinics; these activities have extended to the basic functions of smart phones. A new labor force has emerged for this digitized health transformation utilizing open source engineering platforms, structuring work into two-week Agile design sprints, and leveraging professionals from traditional healthcare settings. In many ways, the practices of these workers appear synonymous to those of other start-up companies across industry spaces. Throughout ethnographic fieldwork over the last year, I have explored the evolution of this phenomenon within an emergent area of the digital health sphere: Digital therapeutics. (read more...)

The Surveillance Cyborg

Editor’s Note: This post is part of our ongoing series, “Queering Surveillance.”  Surveillance is an embodied experience, both being watched and watching. The sheer number of concert-goers recording Cher’s “Here We Go Again” concert this past year with their phones had them trade singing and dancing for an act of documentation. Whether the recordings are to remember the experience later, share the experience with others, or to simply document one’s presence in that space and at that time, recording the concert on one’s phone becomes an experience in its own right. They are present in the space, but their attention is about both what is happening in the here and now and the recording that filters the experience in the future. Their phones and recordings are central to their embodied experience, fused into one like a cyborg traveling across space and time in the moment. Add to this that countless concert-goers are recording the same concert from their individuated perspective, and thus the concert becomes infinite and virtual—of course, the way Cher was always meant it to be. (read more...)