Tag: medical anthropology

The Temporal Politics of Ethnography, Heritability, and Contagion in Tanzania During Covid-19

Editor’s note: This post is the fourth in our five-part series “COVID-19: Views from the Field.” Click here to read an introduction written by series organizer Rebekah Ciribassi. I have been living in Tanzania since March of 2018, conducting ethnographic fieldwork with Tanzanian families that have a genetically-inherited blood disorder called sickle cell disease. My interest in studying the socio-political life of this particular diagnosis in this particular place started in 2012, when I learned of a Pan-African bioscience movement, sited partly in Tanzania, to prioritize sickle cell disease research and care across the continent. I became curious about what it might mean anthropologically to shift the timescales of global health intervention from the immediacy of more traditionally-prioritized communicable diseases like HIV and malaria, toward the intergenerational transmission of a genetic condition. Almost two years of interviews and observation with families, activists, and healthcare providers had me thinking about the (read more...)

Cambodia in the time of COVID-19: Conceptions, perceptions, and approaches to the novel coronavirus

Editor’s note: This post is the first in our five-part series “COVID-19: Views from the Field.” Click here to read an introduction written by series organizer Rebekah Ciribassi. When I waved goodbye to my partner at Torino Caselle Airport in northern Italy on February 18th, 2020, I had no idea what was about to happen—people don’t tend to predict the eves of global pandemics. There were no particularly ominous signs to note, and I was heavily focused on the logistics of carrying out my PhD fieldwork in Cambodia.  My research focuses on seasonal variations of the use and consumption of traditional Khmer medicinal plants during maternity by rural women living in Siem Reap Province, Cambodia. My aim is to identify medicinal plants used during different stages of pregnancy, how these medicinal plants are prepared as (or paired with) foods, and what the perceived effects of these traditional food-medicines have on treating symptoms associated with different stages of maternity. In addition to this, I’m also interested in the contemporary role and trajectory of Traditional Khmer Medicine (TKM) within rural community settings and how such traditional knowledge is shared. The overarching goal of this research was to support botanical work being done by the National Herbarium of Cambodia at the Royal University of Phnom Penh, nutrition and dietary research by the NGO Helen Keller International, as well as expand the inter-disciplinary cultural research by the Center for Khmer Studies in my role as a senior research fellow. (read more...)

COVID-19: Views from the Field

COVID-19, or the vernacular “coronavirus,” hardly needs an introduction. By the time of this writing, there are over 1.2 million active cases spread across nearly every country worldwide. There is hardly an area of daily life that remains unchanged by the new and unfamiliar terms of coping and coexisting with a pandemic. Social relations are disrupted, mobilities once taken for granted are halted, forms of connectedness have suddenly become threatening. Social scientists have been quick to respond; our expertise enables us to contextualize novel, emergent events with theoretical insights from mundane life. Much of the focus has been on the indeterminacy of the present moment, and the uncertainties of pandemic life. Academics, of course, have not been immune to those interruptions and uncertainties. For ethnographers actively conducting fieldwork especially, the cutting off of social interaction forces a renegotiation of their place in “the field.” Some of us find ourselves sheltering (read more...)

Negotiating Ethical Technology Use: Trust and Care in End-of-Life Conversations

The headline on the local news station’s website was sensational: “Bereaved Family Upset Kaiser Used Robot to Tell Father He Would Die”. Evoking some sort of post-modern dystopia, the article explains that the family “was taken by surprise when a robot rolled into the room” to deliver the news that an elder family member’s illness had progressed past the physician’s ability to treat it. While the robot actually was a remote physician using teleconferencing software to communicate with the patient and his family, the monitor projecting an image of the physician’s head and shoulders sat atop a tall, narrow metal unit reminiscent of a body. The “robot doctor” story was picked up by national news outlets, like the New York Times, and medical ethicists weighed in on the ethics of communicating “sensitive” topics remotely. The news stories problematized the impersonal, almost routinized, care as it was perceived by the family. In one, a representative from the American Medical Association commented, “We should all remember the power of touch – simple human contact – can communicate caring better than words.” (read more...)

Clinical Data in the U.S. Department of Veterans Affairs: Ethnographic Engagements

By: Peter Taber, Nicholas Rattray, Lauren Penney, Megan McCullough and Samantha Gottlieb This post emerged from a 2018 Society for Applied Anthropology panel on anthropological engagements with health data in the U.S. Department of Veterans Affairs (VA). Serving over 9 million enrollees with a current federal budget of USD68 billion, the VA is an important testing site for digital healthcare infrastructure, as it has been for several decades. The panel brought our VA research and quality improvement (QI) efforts targeting the electronic health record (EHR) and other digital infrastructure into dialog with existing work on the social lives of data and algorithms, as well as the broader concerns of medical anthropology and STS in an era of the “datafication of health” (Ruckenstein and Schüll 2017). Extracts from our conversation, presented below, are taken from a follow-up video call exploring these issues. (read more...)

Computable Norms: Clinical Practice Guidelines and Digital Infrastructure

I’m a sociocultural anthropologist by training. Until recently, my research focused on environmental issues in Ecuador. Yet, my attempt to address the gaps left by traditional anthropological approaches to environmental issues quickly brought me into topical areas that the anthropology I was trained in infrequently touched on: institutional change over historical time, knowledge infrastructure work, and particularly the functioning and interaction of modern forms of expertise. I’m now a postdoctoral fellow in medical informatics at the U.S. Veterans Affairs Administration.  It is an odd organizational context to find myself in, as someone who conceived of himself as an environmental anthropologist for years. Yet many of the big themes are strikingly familiar. In particular, I am surrounded by (and participating in) the expert design of sociotechnical contexts intended to be inhabited by other experts – an aspect of environmental expertise that fascinated me in my environmentally-focused research. In my postdoc, I’m fortunate to have exposure to many of the technical nuts and bolts of infrastructure design for clinicians. In my remarks below, I share some reflections about “clinical practice guidelines,” a specific form of formal medical guidance that increasingly constitutes part of the digital infrastructure used by medical providers, designed and implemented in part by informaticists. (read more...)

Weekly Round-up | April 28th, 2017

Thanks to input from a number of helpful readers (you know who you are), we’ve got a bunch of great posts for you this week, running from from evil infrastructure and essential books to Reddit and Duke Nukem. Keep ’em coming! (read more...)

Forsythe Prize Author Sharon Kaufman on Ordinary Medicine

I am delighted to be the recipient of the honorable mention, Diane Forsythe Prize for Ordinary Medicine: Extraordinary Treatments, Longer Lives and Where to Draw the Line (Duke University Press 2015). The book is an ethnography of the invisible social, economic, and bureaucratic forces that have made once extraordinary therapies seem ordinary and necessary.   Medicine’s ability to prolong wanted life through both low-tech and high-tech interventions is a positive development in many respects. Yet the socio-medical imperative to employ death-defying techniques now exists in an ever-aging society in which private industry churns out greater numbers of interventions than ever before; in which no age or cost limits exist for insurance reimbursement of those procedures; in which many older persons, their families and their health providers must consider whether additional treatment will bring with it pain and suffering; and in which saying ‘no’ to new technologies seems somehow suspect or ethically wrong. These features of American society and health care organization have spurred our lively national conversation about whether staving off death is always the best thing to do. And, those features have created the quandary, experienced by millions, of where to draw the line between ‘enough’ and ‘too much’ treatment. (read more...)