Disabling Technologies

Platypod, Episode Two: Ableism in Anthropology and Higher Ed

 Laura Heath-Stout, Rebecca-Eli Long  August 9, 2022

In this episode, Platypod presents a conversation between Laura Heath-Stout (Brandeis University) and Rebecca-Eli Long (Purdue University). They discuss their research and experiences of ableism in academia, anthropology, and higher ed, in general. This episode was created with the participation of Laura Heath-Stout (Brandeis University, speaker), Rebecca-Eli Long (Purdue University, speaker), Kim Fernandes (University of Pennsylvania, host), Svetlana Borodina (Columbia University, host), Gebby Keny (Rice University, sound editor), and Angela VandenBroek (Texas State University, CASTAC web producer). The transcript of their conversation (edited for comprehension) is available below. (read more...)

The Allowable Limit of Disability

 Gabrielle Hanley-Mott  June 22, 2022

 Listen to a reading of this post.

In February 2022 a court in Norway banned the further breeding and selling of British Bulldogs and Cavalier King Charles Spaniels. Beyond Norway, the ban has sparked conversation amongst UK and American breeders. The reason for this ban is the high rates of disability that affect the dogs; the official language is that the individuals are ‘disease guaranteed’. As a person whose work often overlaps with critical disability studies, I found myself obsessing about these news pieces. These dogs were banned because they were considered too disabled, this court was putting a limit on how disabled these dogs were allowed to be. My conclusion, after stewing on this for 6 months, is that disability is the limit of commodification and vice versa, commodification is the limit of disability. First, it is important to understand that these dogs are a commodity. And as a commodity, they have always been disabled. These (read more...)

Disability Dongle

 Liz Jackson, Alex Haagaard, Rua Williams  April 19, 2022

이 컨텐츠는 한국어로도 읽어볼수 있습니다.

 Listen to a reading of this post.

I created the term “Disability Dongle” in 2019 to draw attention to the phenomenon of design and engineering students and practitioners who prototype “innovative” disability solutions. The definition satirizes an outcome in which designs or technologies “for” disabled people garner mainstream attention and accolades despite valid concerns disabled people have about them. (read more...)

Co-signature Event Context: Toward a Participatory Electronic Health Record

 Naomi Schoenfeld  October 21, 2021

The days of doctors scratching illegible notes in charts fated to hide in obscure files never read by another soul is long gone. Over the last two decades, paper charts have nearly disappeared as the evolution of the electronic health record (EHR) has come to dominate the healthcare environment not only in the US, but globally. The health record performs multiple types of labor. It serves to facilitate communication in medical care or research; it is a legal document and a record to justify billing. A new diagnosis and billing code must make its first entry into the medical record accompanied by the signature of a clinician authorized to determine this diagnosis. After this initial entry, non-professional personnel may then use this diagnosis for any of the above purposes (communication, billing, legal). This blog post explores how developments like the patient portal of the EHR create new opportunities for interpretation, (read more...)

Elements of disability inclusion in Soviet disability pedagogy

 Svetlana Borodina  October 26, 2020

For someone interested in the genealogy of disability inclusion in Russia, Soviet disability pedagogy, known at the time under the name of defektologia, may seem to be a somewhat unexpected place to turn to. On the one hand, the Soviet system of korrektsionnoye education for children with disabilities embodied isolationism and paternalism, the features which characterized Soviet disability governance more broadly (Shek 2005): schools for students with disabilities were built at a significant distance from the heart of urban life; they functioned predominantly as boarding schools, de facto exerting control over children’s mobility and public appearance; they often had little contact or interaction with mainstream schools and communities. On the other hand, Soviet disability pedagogy also produced moments when disability exclusion, otherwise naturalized across various domains of life, had been problematized and questioned. To them, I turn in this post. (read more...)

Platypus Celebrates National Disability Employment Awareness Month

 Baird Campbell  October 7, 2019

In support of National Disability Employment Awareness Month, please enjoy some of our favorite posts engaging with understandings of disability! (read more...)

The FDA, Patient Empowerment, and the Type 1 Diabetes Communities in the Era of Digital Health

 Samantha Gottlieb  April 23, 2019

The day-long September 2018 workshop, “Medical Devices-Patient Engagement in Real World Evidence: Lessons Learned and Best Practices,” sponsored by the Food and Drug Administration (FDA) and University of Maryland (UM), met on the Baltimore campus, the city where I spent my graduate school years. In contrast to Baltimore’s palpable desperation, UMB’s health campus gleamed with newness, its brick walkways and tastefully planted vegetation viewable through floor-to-ceiling windows. In the well-appointed auditorium, Dr. Jeffrey Shuren, director of the Center for Devices and Radiological Health (CDRH, pronounced ‘cedar’), closed his introduction to the conference with the pronouncement that as the FDA moved toward real world evidence (RWE), “patient engagement” and the data patients may collect are invaluable for RWE. (read more...)

Writing disability

 Rebekah Cupitt  January 31, 2019

When writing inequalities, the language we use and our writings betray the power dynamics and the unequal relations that stem from the world we as researchers come from. This post explores how these inequalities play out in the worlds we embed ourselves in as outsider researchers and are apparent in what we write through a reflection on my own research with dDeaf television producers and actors in Sweden. (read more...)