health | Platypus

How to Book an Appointment Online when you have Aphasia

 Abi Roper  August 21, 2018

I’m meeting a fellow speech therapist researcher at a weekly drop-in session for people with aphasia when Markus* comes in, brandishing an envelope. “I went!” he exclaims. Markus has just arrived fresh from a visit to the head office of one of his home utility providers. He has taken matters into his own hands after coming up against a technological obstacle. Markus regaled to us his story using an effective combination of short spoken utterances, gesture, a written note and an established communication dynamic with my fellow speech therapist. I want to share with you his story to discuss the issue of technology and aphasia. Markus had received a letter telling him that his boiler (the British term for a home water-heating system) needed to be serviced. The letter instructed him to call or go online to make an appointment. Due to his aphasia, however, Markus had found himself unable (read more...)

Personal Computing and Personhood in Design and Disability

 Meryl Alper  June 13, 2017

Editor’s Note: This is the third post in the series on Disabling Technologies When I try to explain augmentative and alternative communication (AAC) devices to those unfamiliar, I usually start with physicist Stephen Hawking, who has amyotrophic lateral sclerosis (ALS). Hawking speaks using a high-tech computerized AAC device with synthetic speech output (Mialet, 2012). The electronic voice communicates to others the text that Hawking selects from a cursor moving across the computer screen mounted to his wheelchair using his cheek movement as input. These sorts of ‘tools for talking’ are also used by those with other disabilities and medical conditions that potentially impair oral speech such as autism, cerebral palsy, or a stroke. AAC devices are mobile by definition, as they ought to move with a person as they move through the world (Reno, 2012). They are becoming more “mobile” in another sense too. Individuals increasingly have the option of using AAC devices that take the material form of ordinary smartphones, tablet computers, and mobile apps that simulate software on specialized computers dedicated to AAC (Alper, 2015). (read more...)

Becoming More Capable

 Alex Taylor  April 22, 2017

Editor’s Note: This is the second post in the series on Disabling Technologies “We need to exercise the imagination in order to elbow away at the conditions of im/possibility.” Ingunn Moser & John Law (1999, 174) What is it to be capable? How might we elbow away the conditions that limit ability, to become more capable? In this short piece, I take seriously Rebekah’s invitation to account for “different ways of doing, acting, and living in the world.” The anthropological imperative to “take into account difference” and consider how objects “intersect with social worlds, imaginaries and emergent social practices” speaks to my ongoing efforts to engage with the long and troubled relationship between technology and dis/ability. Specifically, it resonates with my work that asks what, if anything, artificial intelligence (AI) might offer the blind and vision impaired. (read more...)

What the $@#! is an “implication for design”?

 Rebekah Cupitt  March 7, 2017

Editor’s Note: This is the first post in the series on Disabling Technologies The upcoming theme for the Association for American Anthropologists Annual Meeting is “Anthropology Matters.” While clearly signalling the need for anthropologists to engage and contribute to current social and political affairs in the U.S., the theme can also be interpreted more generally. Today, we’re announcing an upcoming thematic series, Disabling Technologies, which will look at how anthropological perspectives matter for technology designers working in contexts of health, disability, and equality across the globe. (read more...)

The Asthma Files: Anthropological Learning Through Technical Practice

 Erik Bigras  February 5, 2013

The Asthma Files is a collaborative ethnographic project focused on the diverse ways people in settings around the world have experienced and responded to the global asthma epidemic and air pollution crisis. It is experimental in a number of ways: It is designed to support collaboration among ethnographers working at different sites, with different foci, such that many particular projects can nest within the larger project structure. This is enabled through a digital platform that we have named PECE: Platform for Experimental, Collaborative Ethnography. PECE is open source and will become shareable with other research groups once we work out its kinks. PECE has been built to support collaborative, multi-sited, scale-crossing ethnographic research addressing the complex conditions that characterize late industrialism – conditions such as the global asthma epidemic and air pollution crisis; conditions that implicate many different types of actors, locales and systems – social, cultural, political-economic, ecological and technical, (read more...)