Category: Series

The Allowable Limit of Disability

In February 2022 a court in Norway banned the further breeding and selling of British Bulldogs and Cavalier King Charles Spaniels. Beyond Norway, the ban has sparked conversation amongst UK and American breeders. The reason for this ban is the high rates of disability that affect the dogs; the official language is that the individuals are ‘disease guaranteed’. As a person whose work often overlaps with critical disability studies, I found myself obsessing about these news pieces. These dogs were banned because they were considered too disabled, this court was putting a limit on how disabled these dogs were allowed to be. My conclusion, after stewing on this for 6 months, is that disability is the limit of commodification and vice versa, commodification is the limit of disability. First, it is important to understand that these dogs are a commodity. And as a commodity, they have always been disabled. These (read more...)

Detangling Molecular Hauntings: Hair as a Site of Preserving Lived Experience

Hair is a dynamic biological structure and retains great social significance for humans. Hair can grow on most external areas of the body except for the palmar and plantar surfaces of the hands and the soles of the feet. The number of areas where hair is most noticeable is also the most commonly coiffed, trimmed, shaved, or plucked. These areas include the face, ears, head, eyebrows, legs, underarm, stomach, and pubic regions. As humans develop in utero into fully formed adults, hair growth signals hormone production such as pubertal development where secondary sex characteristics become more visible. Specifically for hair, it can be an indication that intertwines social identity, status, religion, economics, and politics. (read more...)

Inclusion and Opportunities for Equal Participation for Autistic University Students in France

Like the term “equal participation”, the words “inclusion” and “inclusive” are prevalent today. And they are all typically linked: “equal participation” is often the goal of initiatives focused on “inclusion.” Although the word “inclusive” might appear capacious (inclusive just means everyone, right?), projects focused on “inclusion” and “equal participation” often target specific populations of people who have previously been excluded from something. That’s the case of projects focused on the inclusion of autistic people into higher education, including one in France where I conducted ethnographic research for the dissertation I am currently writing on the changing categorization(s) of autism in France. (read more...)

Technologies of Equal Participation: Formats, Designs, Practices. Introduction.

Listen to an audio recording of this piece read by Svetlana Borodina Only today, an unremarkable Friday morning in March 2022 (the day when I was writing this text), my participation has been requested at least eight times. On my way to work, as I was running down the stairs to catch a train, through the sound of music coming from my headphones I caught, “Please make sure to vote!” This was followed by a faint addition: “if you are a voter.” As I purchased coffee in a corner shop right outside the subway, the screen solicited my participation in their customer satisfaction survey: “What can we improve?” At work, as I sat down and opened my email, I saw that the NYC Parks and Rec Department had sent out a new batch of volunteering opportunities; a colleague had sent an invitation to participate in a round table next month; and a friend working on their UX portfolio had sent a link to a survey for an app they’d been working on (“What kind of problems do I run into in my commute?”). Meanwhile, my family’s WhatsApp chat was filling up with the regular, “Sveta, are you even here?” messages, complaining about my lack of participation in conversations. A gofundme campaign to crowdfund struggling refugees and a friend’s paper silently awaited their time, too. (read more...)

Revisiting Human-Machine Relationships and Efforts of Feminist STS

Alexa, Bixby, the GPS voice, Siri.… AI (Artificial Intelligence) assistants, which operate through algorithms and also produce them, have restructured our everyday lives: from listening to music to getting a sense of where we are (if the GPS is working properly). For users, these “assistants” have become integral parts of our everyday lives. Human-machine communication, in turn, has become more intimate than ever before. However, little effort has been made to understand this intimacy between humans and machines. Instead, much attention has been centered on the increasing obsolescence of technology, as newer models and gadgets enter the market. To recognize machines as sociable and understand human-machine relationships from a different perspective, I revisit feminist STS (Science and Technology Studies) scholars’ works. Furthermore, I look at smartphones, which are usually only considered as hosts for the immaterial AI, as social. (read more...)

Disability Dongle

I created the term “Disability Dongle” in 2019 to draw attention to the phenomenon of design and engineering students and practitioners who prototype “innovative” disability solutions. The definition satirizes an outcome in which designs or technologies “for” disabled people garner mainstream attention and accolades despite valid concerns disabled people have about them.  (read more...)

Extractivism en Papier: Chronotopes of Settler-Colonial Capitalism in Australia

What if the greatest legacy of uranium mining is not its localized radioactive toxicity, but the seemingly mundane set of bureaucratic practices it catalysed? In this post, I reflect on the late 1970s origins of Ranger Uranium Mine located on Mirarr country in remote northern Australia, as revealed in a secret institutional archive. In particular, I focus on the hidden practices that clotted during this timeframe, and how they have structured Indigenous-state extractive relations in Australia ever since. This apparently benign spatiotemporal assemblage of textual, material, and social practices, which I have suggested is a chronotope, is in some ways as insidious as the contamination typically associated with this uranium mine. (read more...)

Ethnographies of Nuclear Life: From Victimhood to Post-Victimization

Iitate village, located in Fukushima Prefecture, is typical of rural Japanese hamlets. One finds large arable lands buttressed by imposing mountains that dazzle with emerald-green colors. Iitate fits perfectly this postcard image that many tourists have of rural Japan, with just one difference: among the fields of green are over a million and a half vinyl bags filled with radioactive tainted soils. Rows of black plastic bags, piled on top of each other, form Mayan-like pyramids as far as the eyes can see. (read more...)